Examples of Data Use

This report is designed to assist key stakeholders – policymakers, advocacy groups, community based organizations, and parents – in understanding the health and well-being of children with special health-care needs (CSHCN) in North Dakota. Prepared by the Child and Adolescent Health Measurement Initiative’s Data Resource Center for the North Dakota Department of Health, the report focuses on analysis of CSHCN survey results for the MCHB core outcomes and family impact indicators in North Dakota. In November of 2009 the report won an award for excellence in public health communication from the National Public Health Information Coalition.

Wendy Benz, Coordinator of Family Health Information with Raising Special Kids, used data from the DRC to communicate stories and statistics to policymakers, while working to improve Arizona’s health care delivery system. Read more here on Wendy's work and download a copy of her presentation on Arizona Kids with Special Health Care Needs.
PDF: 90KB

Donene Feist, a parent activist, understands the power of data to support and strengthen the stories parents and caregivers have to tell about the challenges of caring for children with special needs. Read more here on Donene's work and download a copy of her presentation titled "Leaving No Child Behind".
PDF: 78KB

Carrie Howland a mother and family leader included data from the Data Resource Center in a presentation at the National Respite Coalition event in Washington DC, in support of the National Lifespan Respite Care Act. Read more here on Carrie's family, work, and download a copy of her presentation to the Massachusetts legislature in 2006, as well as her most recent testimony to Congress.
PDF: 80KB

The Oregon Developmental Disabilities Coalition used data from the DRC to write a Fact Sheet on expanding access to healthcare for children and their families. The Fact Sheet was provided to state legislators by family advocates.

Boston Parents Magazine article features the story of Carrie Howland and family, along with data from the National Survey of Children with Special Health Care Needs.
PDF: 184 KB

This report is designed to assist key stakeholders – policymakers, advocacy groups, community based organizations, and parents – in understanding the health and well-being of children with special health-care needs (CSHCN) in North Dakota. Prepared by the Child and Adolescent Health Measurement Initiative’s Data Resource Center for the North Dakota Department of Health, the report focuses on analysis of CSHCN survey results for the MCHB core outcomes and family impact indicators in North Dakota.

This Health of Washington State report used findings from the 2001 NS-CSHCN and 2003 NSCH in their chapter on children with special health care needs.

Sarah Thorson, Supervisor of Minnesota’s Title V uses data from the DRC to develop fact sheets for the 5 year needs assessment required by the national Title V Maternal and Child Health Program. Read more here on Sarah's work and download a copy of her Needs Assessment Fact Sheets.
PDF: 78KB

Barbara Hale has used the Data Resource Center to influence health care policy in the state of Alaska. Read more here on Barbara's work and download a copy of her presentation to "Alaska's Covering Kids Coalition" Meeting in October 2005.
PDF: 77KB

The Maine Children's Alliance compiled this comprehensive report on the physical, social, economic, and educational well-being of Maine's children.

A report created by Maine Children's Alliance to partner with the Maine Kids Count databook, to provide policymakers with the information they need to improve mental health outcomes for Maine's children.

Implementing the Medical Home Model in Minnesota: A Case Study is the first in a series of maternal and child health (MCH) case studies designed for classroom use by teachers of public health, MCH, health policy, evaluation, and health education in preparing students to serve as effective change agents working within the framework of Title V at national, state, and community levels.

The Alaska Division of Public Health's Section of Women's Children's and Family Health uses data from the 2005/2006 National Survey of Children with Special Health Care Needs and the 2007 National Survey of Children's Health to create this Title V Needs Assessment report brief for their state.

The National Adolescent Health Information Center (NAHIC) used data from the DRC in a report on health care access and utilization for adolescents and young adults.

The Children with Special Needs Branch of the Hawai'i Department of Health uses the 2005/06 NS-CSHCN to outline performance for core outcomes and indicators in their state.

This article, published in the Wisconsin Journal of Medicine, demonstrates using an interelated survey approach to determine level of need and prevalence of CSHCN in the city of Milwaukee.

Champions for Inclusive Communities explains how to use the Data Resource Center to obtain data pertaining to MCHB Outcome #5 from the National Survey of Children with Special Health Care Needs.

Margaret McManus and Harriette Fox of Incenter Strategies stare their experiences with technical assistance at the DRC. Margaret and Harriette wrote a report brief based on data from the National Health Interview Survey and the National Survey of Children's Health, this fact sheet examines the relationship of race and ethnicity for a set of 12 indicators. Read more here about the work at Incenter Strategies and to download a copy of the report brief “Racial and Ethnic Disparities in Adolescent Health and Access to Care”.
PDF: 136KB

This report brief by Mathematica Policy Research profiles children with chronic conditions and disabilities using the 2001 NS-CSHCN, addressing the issues of treating emotional and behavioral disorders in children and adolescents.

The Oregon Developmental Disabilities Coalition used data from the DRC to write a Fact Sheet on expanding access to healthcare for children and their families. The Fact Sheet was provided to state legislators by family advocates.

The Oregon Developmental Disabilities Coalition used data from the DRC to write a Fact Sheet for state legislators to encourage support of a Medicaid waiver for medically involved children. The one page document provides a quick overview that clearly outlines facts and how proposed legislation will benefit children and their families.

Dr. Brian Rogers used state-by-state comparisons from the National Survey of Children with Special Health Care Needs in his preparation for a legislative hearing on proposed budget cuts to the Child Development and Rehabilitation Center (CDRC).
PDF: 92KB

The National Academies of Science used data from the National Survey of Children’s Health in a report that offers a new framework for the health measurement of children.

Presentations related to the National Survey of Children with Special Health Care Needs.

Search the 2003 National Survey of Children’s Health for indicators related to all aspects of health, insurance coverage, health care access, families and communities, safety and support, performance measures, and demographics.

Presentations and Publications related to the National Survey of Children with Special Health Care Needs and the National Survey of Children’s Health.

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